The 2022 Great Strides Walk to find a cure for Cystic Fibrosis (CF) is back in person this year on Sunday, May 15, 2022, at the Holtsville Zoo and Ecology Center on Long Island!
This will be Team Victoria's 14th year participating in Great Strides! Victoria has had a great year - maintaining her health and positive attitude, enjoying time with family and friends, and in school (socer, track and band). As you may know, in December 2019, Victoria started taking the amazing new medication Trikafta - and the results have been nothing short of awesome. She gained weight, no longer coughs, and feels pretty great overall. And while Victoria is continuing to be challenged with CFRD (Cystic Fibrosis Related Diabetes) for over a year now - she rises up to meet this challenge, and has been working hard to stabilize and maintain good blood glucose levels (while still enjoying her life)!
All of the new drug therapies, research, and other treatments that are still in development are truly remarkable, and all of this progress wouldn't be happening without your generous donations and support. So thank you!!
Let's make CF stand for "Cure Found."
With love and gratitude, Michele, John (and Victoria!)
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, lovers and co-workers who struggle every day just to breathe. We walk for them and for our daughter Victoria - and hope you will support us by making a donation. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.