The Cystic Fibrosis Foundation is holding its national Great Strides walk. As you know, our 35 year-old son, Bobby, faces a daily battle against this deadly disease.
Cystic Fibrosis is a chronic, progressive, genetic disease which affects the pulmonary and gastrointestinal systems. Bobby has experienced disease progression over the last couple of years but since he started Vertex’s Trikafta his lung function has climbed 14 points from baseline, he has gained 22 pounds, has now cleared the thick mucus in his lungs, has stopped coughing and has more energy.
We are so grateful to everybody who contributed. The 35 years of walkathons has yielded this medical miracle. Although this drug is not a cure it corrects the basic cell defect by creating a more normal condition in CF lung cells and other organs such as the pancreas. What this drug can’t do is reverse the historical lung tissue damage caused by the chronic and intractable infections and cycles of inflammation that are the hallmark of CF. Our work is not done. We have put the disease on its heels, but the knock-out punch of a cure remains elusive. Time is our enemy and everything that can be done to accelerate the efforts for a cure, and more years to patients’ lives, requires even more funds.
Your continued support is urgently needed to complete our mission to successfully defeat CF, our nation #1 genetic killer of children and young adults. Please join our team by donating online.
Or mail a check to: The O’Mahony Family, 812 Imperial Drive, Baldwin, NY 11510