Maryann OMahony

The Cystic Fibrosis Foundation is holding its national Great Strides walk.  As you know, our 36 year-old son, Bobby, faces a daily battle against this deadly disease.

Cystic Fibrosis is a chronic, progressive, genetic disease which affects the pulmonary and gastrointestinal systems.  Bobby has experienced disease progression over the last decade but has stabilized. We want Bobby to be able to watch Mallory achieve her goals in life.

We are so grateful to everybody who contributed. The 36 years of walkathons has yielded this medical miracle Vertex's Trikafta . Although this drug is not a cure it corrects the basic cell defect by creating a more normal condition in CF lung cells and other organs such as the pancreas. What this drug can’t do is reverse the historical lung tissue damage caused by the chronic and intractable infections and cycles of inflammation that are the hallmark of CF. Our work is not done. We have put the disease on its heels, but the knock-out punch of a cure remains elusive. Time is our enemy and everything that can be done to accelerate the efforts for a cure, and more years to patients’ lives, requires even more funds.

Your continued support is urgently needed to complete our mission to successfully defeat CF, our nation #1 genetic killer of children and young adults. Please join our team by donating online.

Or mail a check to:  The O’Mahony Family, 812 Imperial Drive, Baldwin, NY 11510