Dear G-Man Group Friends,
Hello to all! Hope that you are well since I wrote for last years donations. I know that we were NEVER able to actually have a physical walk last year and for that you can blame the rain on practically EVERY weekend. Greg had a great year as far as his Cystic Fibrosis. He is back in the care of Dr. Keating at Columbia Presbyterian Hospital. He did finally get relief from his chronic stomach issues, which was the most problematic issue.
We WILL NOT BE ABLE TO ACTUALLY WALK THIS YEAR EITHER DUE TO FAMILY COMMITTMENTS ON THE 2 WEEKENDS OF THE LONG ISLAND WALK SITES. I have signed on the team as a virtual walking fundraising year. You can donate at:
http://fightcf.cff.org/goto/G-Manlcharkowick which is my personal page as the team leader. Donations can be made by clicking on the yellow button that says: DONATE TO LORI or we accept personal checks made payable to: CYSTIC FIBROSIS FOUNDATION and mailed to our home address: 1720 Meadowbrook Road, Merrick, NY, 11566
Donations are accepted for this 2024 year all through the year until midnight on New Year's Eve From our home to yours we send lots of LOVE, HAPPINESS, AND GREAT VIBES TO YOU AND YOURS!
Greg is doing very well with his health, is turning 26 years old this May, and is ADULTING and making his way. Thankfully he has NEVER needed hospitalization for CF as so many of our friends in the CF community. We are TRULY BLESSED.
All of the hard work that is done year round on fundraising but especially at this time of the year leading up to a Great Strides Walk, and AMAZING AND GENEROUS people that support and surround us make drugs and therapy treatments that WILL SOME DAY SOON CHANGE THE LETTERS CF STAND FOR CURE FOUND! We thank you in advance for a donation, joining our walk if you can make it, OR BOTH!
Without the funding and scientific breakthroughs in technology, we wouldn't be this close to putting this in our rear view mirror and finally sleeping soundly each night by not thinking about our son and CF always being there.
Love and Thanks,
Lori, Tommy, Matt and G-Man xo
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.