Greetings family and friends!
The 2022 Great Strides Walk to find a cure for Cystic Fibrosis (CF) is back in person this year - on Sunday, May 15, 2022, at the Holtsville Zoo and Ecology Center on Long Island!
This will be Team Victoria's 14th year participating in Great Strides! Victoria has had a great year - maintaining her health and positive attitude, enjoying time with family and friends, and school (socer, track and band). As you may know, in December 2019, Victoria started taking the amazing new medication Trikafta - and the results hae been nothing short of amazing. She gained weight, no longer coughs, and feels pretty great overall. While Victoria has been challenged now with CFRD (Cystic Fibrosis Related Diabetes) for over a year now - she rises up to meet this challenge, and has been working hard to stabilize and maintain her blood glucose levels (while still enjoying her life)!
All of the new drug therapies, research, and other treatments that are still in development are truly awesome, and all of this progress wouldn't be happening without your generous donations and support. So thank you!!
Let's make CF stand for "Cure Found."
With love and gratitude, Michele, John (and Victoria!)
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, lovers and co-workers who struggle every day just to breathe. We walk for them and for our daughter Victoria - and hope you will support us by making a donation. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.