My daily routine was very different from healthy kids. I had to wake up early and do various nebulizers and chest physical therapy. Take dozens of pills every morning and night and every time I ate anything. When my oral meds weren't doing enough, life stopped and I had to be admitted to the hospital for stronger antibiotics delivered intravenously. My parents still raised me to not let CF define me or limit me from dreaming big. As I got older and the disease progressed, it definitely got harder, but the fight to live has always been really strong in me. I have survived two double lung transplants, a kidney transplant and many other medical emergencies that almost ended my life. I am almost 38 years old and cannot believe I am still alive and that I am a wife and a mother - two things I always dreamed of being, but didn't know if it would ever happen for me.
Individuals born with Cystic Fibrosis today have a much better outlook than when I was born in 1984. The life expectancy for someone born now with CF is 46 years old. This is wonderful news, but there are still many people who don't make it that far, and their lives are cut way too short. Transplants are still a viable option for end stage disease, but if you have followed my story at all, you know that comes with a whole different set of risks and complications. We need a CURE!
In the past few years, new medications have been approved for CF that treat the disease at a cellular level. It has improved so many peoples lives, but it is still not a cure. There are still many side effects to these new therapies, and the medicine isn't effective for everybody with CF. We are getting so close to a cure but we aren't quite there yet. None of these advancments would have been possible without the support from people like you. Every single dollar counts in the quest for a cure. Please help me raise money so that one day CF really can stand for CURE FOUND.