Nicole Mancini

There’s no doubt that this little man is the strongest most resilient boy we know. The CF community has become new to us over the last three years but it doesn’t stop us. We want to raise awareness about this silent disease and we’re not going to stop until CF stands for CURE FOUND! 2023 was the year Cole was able to start the life changing CF medication called Trikafta. So far it has been life changing and he is responding so well! COLE FIGHTS!

Cole was diagnosed with cystic fibrosis after birth through his newborn screening at the hospital. We had no idea that we were carriers so it was a big shock to our family. Since then he has become accustomed to daily nebulizer treatments, chest physiotherapy and takes his enzymes and Trikafta like a champ before he eats. There’s no way he will let this silent disease overcome him and he’s going to continue to fight like a champ! CF doesn’t define him- it’s just a part of his life. We are so thankful for everyone’s continued support and can’t thank everyone enough!

The Suffolk County CF walk is May 19th at Holtsville Ecology center! 9:00am check in. 10:00am start time. Come join us and support the CF community and our little warrior Cole! ‍ 

There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?

Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.  

Please support me!

We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!