Hello, and welcome to the Salty Cysters NYC team page! Over 30,000 Americans are living with Cystic Fibrosis. How can we help?
This will be the SECOND year a Salty Cysters team will be walking in New York City! Though it's only this specific team's second walk, the Salty Cysters - aka, Tiff and Lea - have been advocating for a Cystic Fibrosis cure for years.
After becoming friends over twitter, Lea and Tiff decided to put their efforts together to create Salty Cysters. Salty Cysters has many forms, including a Facebook page, an Instagram account, and a website, all of which focus on sharing the daily life experiences of living with CF. Tiff has shared her transplant journey since the beginning, taking everyone through the high highs and the low lows of being the reciever of a double lung transplant. As Tiff was adjusting to her new lungs and all the changes that came with them, Lea posted about her every day life with Cystic Fibrosis, including everything from travel to work to relationships.
In the fall of 2018, Lea caught an infection she just couldn't shake. She passed away on December 13th, 2018. But even in death, Lea has been unstoppable. The Salty Cysters have touched so many lives, and it seems that everyone who was affected by Lea's work has mobilized in her honor. Her unflinching honesty about living with Cystic Fibrosis was a gift. She celebrated when things were going well. She shared her frustrations when treatments didn't go as planned. She was dedicated to sharing every experience, allowing others to learn what it was like to live with a chronic illness and giving space to chronically ill people to relate and share their experiences. And in being unapologetically herself, she gave those around her permission to be their honest selves, which was one of her greatest gifts of all.
Tiff has been working tirelessly to have Salty Cysters teams walking in as many Great Strides walks this year as possible! We're proud to aid her in that journey and walk for Lea in Manhattan this coming May. And the Cystic Fibrosis Foundation is a four star charity on Charity Navigator, with an exceptional amount of funds going right back into their research and care programs, so you know your donations will be going to the right places! When you donate or walk with us, you're contributing directly to a better future for children and adults with Cystic Fibrosis.
Can't wait to keep you updated on all of our progress!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.