Marc is 10 years old and Thank God, he's doing great!!!
Marc is healthy, active and talented!!! He's an actor in musical theater. He's has a gift for music. He takes voice and piano lessons. He's an awesome swimmer working on his technique with weekly swimming lessons. He likes to play soccer and basketball. He likes to roller skate and ice skate. He likes bowling, and of course, playing video games! He loves going to the movies with his buddies!
He's in 4th grade now, working hard on his academics! We're so proud of him and we know he can do anything he sets out to do!
Marc spends between 2-3 hours doing his daily treatments. He goes to the CF clinic quarterly for routine examinations, and almost every time he gets sick. Aside from COVID, he must be very careful in public to keep away from bacteria and viruses that can make him extremely sick. He takes pancreatic enzymes with every meal and snack to digest his food, but he often get stomach pains regardless.
Most people know Cystic Fibrosis as a "lung disease" because the thick mucus always adversely affects the lungs. But it also affects the stomach, gastrointestinal tract, sinuses, pancreas and liver. The constant exposure to medication can also damage the kidneys. It can causes CF related diabetes and male infertility. Not to mention the mental health issues of depression and anxiety. CF is a progressive, chronic illness with no CURE!
Marc looks great, he's healthy, but it takes a lot of daily maintenance, medication and patience to go about his life as a typical 10 year old boy!
Marc's been on Trikafta for 2 years. Trikafta helps in correcting the mutated genes for CF patients with two copies of the F508del mutation. It helps to improve lung function and reduce respiratory exacerbations,but it is NOT a cure! It doesn't eliminate his daily routines of treatments and medications. Despite Trikafta's promise, the average life expectancy of a CF patient is 53.
We still need a cure for Marc and we'll walk every year until they find one!!!
There are approximately 40,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to BREATHE.
We walk for them. Will you help us?
All we need you to do to is either make a donation (any amount is appreciated) or become a member of our team by clicking on the "Join our Team" button. From there you can make a donation and start your fundraising.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.