When Oliver was just a couple of weeks old, we received a phone call that his newborn screening test came back abnormal. After multiple sweat tests and blood tests, we discovered Oliver has two CF traits. He was originally diagnosed with CFTR - Related Metabolic Syndrome (CRMS). Unfortunately, in 2019 Oliver's sweat tests results went up significantly and his diagnosis was changed to CF.
Oliver has been on Trikafta for a whole year. We noticed that he gets over colds quicker than he used to, but his cough still lingers. Please support us!
Your money goes to funding research that allows medications to be used on different traits (like Oliver's!) We are incredibly grateful for our insurance that makes this $300,000 a year medication affordable, but that is not the case for everyone. Your money also helps other families who cannot afford these life saving medications obtain them. Your gift is 100-percent tax deductible.
Since Oliver turned 7 this year we have a goal of $700 and are hoping to increase our goal to match his age every year.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
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