We came to learn our son Quincy has Cystic Fibrosis in an unusual way. An error at the Department of Health with his newborn screening meant we were told late, when he was 17 months old, rather than a month old as is the norm.
The sudden shock of that news to our family's reality is hard to put into words. Thankfully the support from the CF community was evident immediately. Within 5 minutes of receiving his diagnosis we were placed on a phone call with a CF genetic counselor, whose words of comfort and evidenced based knowledge caught us in our fall.
The support hasn't stopped since; everyday there has been someone we can call to talk to, ask questions to or express our concerns. Our CF community is full of altruistic , caring people able to help navigate our family through our new reality, lifting us away from feelings of isolation and despair to those of hope and optimism.
That is something worth celebrating, which is why we have started Team Quincy for our inaugural walk in the 2022 Great Strides in New York City. We invite you to join us in this opportunity to celebrate our son in all his bravery, and to help raise money for a community and its cause that has made such a huge impact on our lives and the lives of so many others like us.
You are able to donate and/or join our team to walk with us, in person or virtually. Any involvement is appreciated beyond words. Links to each option are on this page
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To help minimize the risk of COVID-19, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Please be advised certain localities and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you are feeling ill or have been recently exposed to COVID-19.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.