For the past 17 years, our family & friends have been tirelessly working towards giving Stanley, and all those with CF, the opportunity to a better quality of life and ultimately a cure for CF. From the bottom of our hearts, we truly can't thank you enough for your love, dedication and continuous support.
Last year, our CF community had a huge breakthrough with the approval of Trikafta, a transformational drug which Stanley fortunately was a study participant for. The results have been tremendous!!
Without you, Stanley would not have the strength, hope and miracle drugs that he has today. THANK YOU!!
From the Great Strides Walk in lower Manhattan to our annual Breathe White for CF gala, together we have generated massive awareness for the disease and have personally raised over ONE MILLION DOLLARS for Stanley and Cystic Fibrosis. All thanks to YOU!
Each year it becomes more difficult for us to ask, as a family, for your support knowing how much you have already done. Please know, we are beyond grateful and you have truly made such a difference in our lives...
It is because of you, we have had these precious 17 years of good health and hope with our son Stanley. And it is because of you, we will continue to strive for a strong tomorrow filled with even more strength, even more hope and even more love.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.