When Oliver was just a couple of weeks old, we received a phone call that his newborn screening test came back abnormal. After multiple sweat tests and blood tests, we discovered Oliver has two CF traits.
He was originally diagnosed with CFTR - Related Metabolic Syndrome (CRMS). Unfortunately, in 2019 Oliver's sweat tests results went up significantly. His diagnosis was officially changed to Cystic Fibrosis so we need to see the doctor more often. He is still healthy and does not need treatment, but it is a reminder how much more research still needs to be done.
Please support us!
Help us reach our fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress. Your gift is 100-percent tax deductible.
Since Oliver turned 4 this year we have a modest goal of $400 and are hoping to increase our goal to match his age every year.