For the past 19 years, our family & friends have been tirelessly working towards giving Stanley, and all those with CF, the opportunity to a better quality of life and ultimately a cure for CF. From the Great Strides walk in NYC to our annual Breathe White for CF gala, together we have generated massive awareness for the disease and have personally raised over 1.2 MILLION DOLLARS for Stanley and Cystic Fibrosis. From the bottom of our hearts, we truly can't thank you enough for your love, dedication and continuous support.
Over the past few years, our CF community had a huge breakthrough with Trikafta, a transformational drug which Stanley fortunately was a study participant for. The results have been tremendous for Stanley- but not everyone with CF had the same fortune as the drug is only effective with certain genes. We need to keep pushing, and pushing hard and fast as time is of the essence. Help us ensure everyone with CF lives a manageable and healthy life and join us this year in support our team at the Great Strides Walk.
Please know, we are beyond grateful and you have truly made such a difference in our lives and in our community...
It is because of you, we have had these precious 19 years of good health and hope with our son Stanley. And it is because of you, we will continue to strive for a strong tomorrow filled with even more strength, even more hope and even more love.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.