Clara and her babies! Spirit & Franklin
My Great Strides Story.
Being a parent of a CF child is a rocky road. Cystic Fibrosis affects the lungs, pancreas, and other vital organs and progresses with time. The symptoms vary from person to person, but all take a toll on the body with age.
We are so incredibly grateful that Clara is on a new med that’s keeping it all in check. At 24 she is living in NYC, working, performing and enjoying it all.
We thank The Cystic Fibrosis Foundation for this extraordinary progress — fostering the development of more than a dozen CF treatments that have added years to Clara’s life. They are on it! But these treatments are not a cure and not everyone benefits from them. That’s why we walk and raise funds. We won’t stop until it’s done!
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for Clara and everyone with CF. Please consider joining us and helping make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.