As most of our friends know, our daughter Emily was born with Cystic Fibrosis. Now at 5, Emily is beginning to understand her CF limitations and the importance of twice a day treatments but also will not allow it to control who she is or limit what she does. Whether at gymnastics, on the soccer field, or on the trampoline with her two sisters....NOTHING holds her back and when we ask her about her CF, she responds "So What." To see that determination and commitment every day from Emily and her fellow CFers is remarkable and must be looked at as an inspiration. Her strength and perseverance drives our family Every Day!
On May 19th we will be walking to help add tomorrows for Emily and all the others CFers that are fighting every day to breath. Please join Emily and our family in this fight, we will not stop until CF stands for Cure Found! We look forward to celebrating with our friends and family with a BBQ after the walk.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.