We walk for Caelynn, we walk until CF stands for cure found. Cystic fibrosis is very complicated, because everything seems great until it's not. Caelynn takes many life-sustaining drugs and does her breathing treatments everyday (twice a day); no breaks, no holidays off, regardless of even the most special of days! While many new medicines are coming out, they would NOT allow her to skip those treatments or reduce her medicine intake (it would actually increase it), only a cure would be capable of that.
Outwardly, Caelynn seems like a regular, fun, excited 4 year old! Which is all still very true, but there's more that goes on in our daily lives behind the scenes. As her parents, we have to make critical decisions every day to make sure she stays healthy, gets the right amount of medicine in response to her daily functions, and monitor her health and growth closely to be sure we are on track. We have been blessed with a wonderful and mostly healthy year, and hope to continue many more of those. Please join us to be sure that happens!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.