Our Great Strides Story
We walk for a cure for all people with cystic fibrosis. By joining our team, you can help us end this disease!
We walk for Caelynn, who was diagnosed with cystic fibrosis in utero. Caelynn started off life with surgery right from day 1! She’s a fighter in all senses of the word.
Caelynn loves soccer, gymnastics, reading, making art, and hanging out with her friends. She is responsible and open about CF- every year since first grade she has educated her classmates about cystic fibrosis and most recently served as a guest speaker (with the help of her parents) in a Princeton University class to show the patient/family perspective on the disease.
While our family has a lot more “behind the scenes” stuff to do every day than most other people, we find many joyful moments together and look forward to many more. Walking with us or donating to Great Strides is a way to contribute our family’s future together. With your support, we know that the “CF roller coaster” will not keep us from enjoying our time on the “ups” so we can persevere through the “downs”.
To become a team member, click the “join this team” button. Once you register, it’s easy to donate and start fundraising.
Our team is determined to ensure that every person with CF can live a long, healthy life, without the limitations caused by their disease. We can’t wait for you to join us!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.