
My Great Strides Story
When I was 8 years old I learned of a disease called Cystic Fibrosis, my sister Tina Marie was born with the disease January 30,1972. In 1977 my youngest sister was diagnosed with CF, unfortunately Tina Marie loss her battle to Cystic Fibrosis two days after her 13th Birthday.
I believe the 5 years of expanded research, the new medications developed because of the funding for research by the CF Foundation, and care from Schneider Children’s Hospital and Columbia Presbyterian Medical Center in NY made a difference in my younger sister's survival. Today she is a researcher at one of top pharmaceutical companies in the world, received her Master’s of Science degree with honors, she is a wife, a mother, she is living life at the age of 45!
Please consider donating, any amount will help bring us closer to a cure. Nearly 40,000 people in the United States have Cystic Fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them. I will never forget the challenges my sister's' have gone through and the boxes being delivered with life saving medications from the CF Foundation. As a child and adult the experience of growing up living life with siblings battling this devastating disease has had a profound effect on my life. I am grateful for the CF community and the CF Foundation for their unending support.
The CF community, the CF Foundation continues to foster the development of more than a dozen CF treatments and helped add decades of life for people with CF. Their vision is a cure for every person with Cystic Fibrosis – a life free from the burden of this disease – and they will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.