Gabriella Carnivale

My Great Strides Story

In 2019 our whole world got turned upside down when our son Declan was born with cystic fibrosis. When he was only 12 hours old he had to go in for abdominal surgery to clear a blockage that was caused by his cystic fibrosis. Today our lives are filled with many medications and daily airway clearances. However Declan is so much more than his disease. He a is smart, crazy, funny, stubborn little boy who loves dinosaurs, sharks and the beach! He is resilient and will forever be my hero. On February 14,2023 our daughter Peyton was born. During my pregnancy we had genetic testing done and were told that she did not have cf. however we soon learned that she does in fact have cf and that the lab made a mistake. So like Declan her days will consist of lots of medications and daily airway clearances. But like her brother her disease will not define her. With your help hopefully one day soon my children will not have to live with this disease but until then I will not stop fighting for them and their future. 

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.