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When Rebecca was one week old, her newborn screening test revealed that she might have cystic fibrosis. After months of tests and waiting, we learned that this nightmare had become our reality After we got over the initial shock of it all, we began our mission of living and providing Becca with a normal life, as best as we could. She began nebulizer treatments and chest physical therapy right away and we learned to settle into a new routine. As much as we maintain a positive attitude and outlook, the reality is that it isn't normal for a three year old to have to complete three different nebulizers, PEP therapy, and chest physical therapy when she wakes up and before she goes to sleep each and every day. When she becomes sick, these treatments increase to 2+ hours per day. When she was 10 months old, she began using a vest connected to a compressor to shake her little lungs. She has now clocked 1,152 hours (and counting!) connected to this machine. While we are incredibly grateful that she has access to this treatment, we hope that someday she doesn't needit anymore. Not too long ago, she asked me when she wouldn't have her CF anymore. My response was "I don't know but people are working very hard to help it go away". I hope that someday I will have a much better answer for her. We hope and pray that she will live a long, healthy, happy life.
30,000 people in this country are living with CF. The CF Foundation is supporting groundbreaking research towards finding effective treatments to help slow the progression of lung damage and ultimately, finding a cure. Your support will help to advance life-saving research and medical progress and is 100-percent tax deductible.
We would love to have you with us this year as we walk in search for a cure! Thank you for your support!