I Walk for Claire Bear!
My niece, Claire Genevieve, was diagnosed with Cystic Fibrosis in 2016. I am walking for her and for the CF foundation that has shown us nothing but love and support.
For those who don't know Claire, she is the most amazing 9 year old there is. Her vibrant personality is infectious. She is so imaginative, strong, creative, intelligent,and just the happiest little girl.
Real progress has been made in the search for a cure.
In the past few years, a new drug has been approved by the FDA that makes a CF patient's symptoms dormant. It's not a cure, but it's a step closer. Claire started this drug a few years ago, and has seen much progress! Her lungs are currently working better than ours! All of this is b/c of you!! What you have helped us out with throughout the years and continue to do so has made this possible. Saying thank you could never be enough!
Please help me reach my fundraising goals by donating so we can keep making great strides to a cure! Thank you!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.