We walk for Caelynn, we walk until CF stands for cure found. Cystic fibrosis is very complicated, because everything is great until it's not. Caelynn takes many life-sustaining drugs and does her treatments everyday, (twice a day) no breaks, no holidays off, regardless of the most special of days. While many new medicines are coming out, that would not allow her to skip those treatments or reduce her medicine intake (it would actually increase it), only a cure could do that. Outwardly, Caelynn seems like a regular, fun, excited 5 year old! We wish people would understand the demands of our day to day lives in order to make sure we fit everything in that needs to be done, it can be exhausting at times. While trying to adjust our day in order to attend different events can be challenging at times, we know it is also worth the enjoyment and fun through Caelynn's eyes.
Which is all still true, but there's more to it that goes on in our daily lives. We have to make critical decisions every day to make sure she stays healthy, gets the right amount of medicine in response to her daily functions, and have to monitor her health and growth closely to be sure we are on track. We have been blessed with a wonderful and mostly healthy year, and hope to continue many more of those. Please join us to be sure that happens!
Here's a story about our rough start:
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Please support me!
Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.