We will be participating in the annual CF walk for a cure Sunday 5/19/24. As many of you know our 21 year old son Jimmy has Cystic Fibrosis. This year has been particularly difficult for us, we found out that Since Jimmy's mutation is very rare he will not be able to benefit from any of the lung therapies/drugs and therefore we started the lung transplant process in January. Not to mention the hospital stays, numerous IV treatments and still no relief for Jimmy. The transplant process has been a very long and difficult process but we are close to the finish line. We are hoping in the next 6-8 weeks Jimmy will be registered on the lung transplant list and receive his lungs soon after that.
We are still supporting Great strides and all the great work they do,help us reach our fundraising goal by donating to our Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100% tax deductible.
If you would like to make a donation please click the Donate link:
Thank you,
Laurel, Jim, Jimmy, Megan and Brian
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.