Maddalena Nava

Dear Family and Friends,

It's that time of year again for our annual Great Strides Walk being held on Sunday, May 19, 2024, at Sandy Hook, NJ. I hope you can join us as it'll be a fun day to get together with friends and family in support of this great cause.

As most of you know, my nephew Joe was diagnosed with CF at birth and suffered much throughout his life. Joe had a bi-lateral lung transplant 9 years ago - as you can imagine a very difficult time for him. While genetic therapeutics were in the works at that time, they were not available yet for Joe. He was very ill and would not have survived without the transplant. Thank God, Joe was finally able to benefit from Trikafta that was developed after he was transplanted. He started taking the medicine in 2021. It has helped him tremendously especially helpful with his life-long suffering with abdominal pain. His sinus issues have improved tremendously as well.

Without the donations from the CF community, therapeutic drugs for people with cystic fibrosis would not have been possible. I am so grateful for the help from friends and family who have supported Team Tomasso throughout the years. We hope that you will continue to help in our stride to find a cure for cystic fibrosis.

Thank you from the bottom of my heart and God Bless.