The last couple years have been wild, to say the least. Since late 2022, as a family we have experienced some of the lowest lows and the highest highs.
Long story short(ish)... starting in August 2022, I was in and out of the hospital for about six months with different covid-related issues (booo!). Not long after things finally got back to normal in Spring 2023, our son was born (yaaay)! But then, because of that never ending bout of covid, my kidneys were officially shot and I was told I'd need a transplant asap (ugh). Because I have the best family in the world though, five of them were quickly tested as potential donors and ALL FIVE were matches (wow)! I am eternally grateful to each of them, but especially to my incredible Aunt Annie, who donated her kidney to me in December ![❤]()
. It was a rough ride, but thanks to her and the rest of my family, we made it through...as we always do.
As we approach Cystic Fibrosis Awareness month and Great Strides, I can't help but reflect on it all and remind myself that every low we've gone through recently was either directly or indirectly due to CF and every moment of joy was in spite of it.
You see where I'm going with this...
We can not stop fighting for a cure. While I will always be waiting for the other shoe to drop, my hope is that young people with CF and their families will not be on this roller coaster and that for them, CF won't be anything more than a nuisance.
The CF foundation continues to facilitate research and as a result, new treatments are being developed and tested all the time. We need to continue to support their efforts in any way we can.
This year Great Strides is on May 19th at Van Saun Park in Paramus. We hope you can join us or that you will consider donating to this great cause.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.