Hello Everyone!
It is that time of the year, for the Great Strides Cystic Fibrosis walk. I am writing to ask for your help and support.
Cystic Fibrosis is a life-threatening genetic disease that affects the lungs and digestive system. Currently there is NO CURE.
Shane is an amazing 20 year old. Shane just finished his sophomore year at Stockton University. He runs cross country, winter and spring track. He had a great Cross Country and Track season. He made Dean's list freshman and sophomore year both semesters.
With all of your support over the years Shane is able to take Trikafta which is a new drug that 90% of the CF population can take and with great results. Thank you!!!
I will be walking on May 18th in Point Pleasant, NJ with a group of family and friends in honor of Shane. I would greatly appreciate if you could make a donation of $10, $25, $50, $100 or whatever you can afford. If you are interested you can make a check payable to CFF and send to Jennifer McDevitt- 51 Dogwood Dr. Jackson, NJ 08527 or you could use a credit card, just go to
https://fightcf.cff.org/site/TR/GreatStrides/53_Greater_New_Jersey_River_Edge?px=1403805&pg=personal&fr_id=9662
Register or donate under my name Jennifer McDevitt or Team Shane. This should go directly to my personal page. Your contribution is 100% tax deductible. CF receives no federal funding but relies solely on donations. Ninety cents of every dollar of revenue raised is used to support CF research, care and education.
I would also like to ask one last thing—if you could please pass this letter along to family and friends by just adding a personal note from yourself. In this effort I hope it will raise awareness about this disease and lead to more donations. Please also consider your companies matching donation program if you fundraise for this event. Thank you for your help in this effort to help find a cure for CF. We all would like CF to stand for Cure Found.
If anyone is interested in walking let me know we would love to have you.
We personally thank you for your support and generosity.
Thank you, Jennifer, Brian, Shane, and Austin McDevitt
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.