December 2020 Jon and Emily, received the greatest gift from you, our supporters. Trikafta, a medication which has the potential to seriously give them decades more to their life-expectancy and a greater quality of life was FDA approved December 2019 for their specific mutations. Jon and Emily were part of a clinical study funded by the CF Foundation which led to this FDA approval. Since then their health has drastically improved and stabilized. Jon no longer needs a feeding tube, his lung function has increased 20%, and neither of them have been hospitalized or on IV antibiotics since starting the medication. That is still hard to perceive.
There still is no cure for this devastating disease and still a lot to be done and improve. Will you join our team, in person or virtually? Support us by making a donation to my Great Strides fundraising campaign today!
Thank you,
Team Capriotti (Team Cappy), Jon, Emily, Ron, myself and the CF community
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible. Save the date! May 18th in Point Pleasant Boardwalk in NJ.
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.