Ashley Bradley

“It always seems impossible until it’s done” – Nelson Mandela

Until it’s done…

While there have been several life-changing developments in CF research; it is still not done. The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis.

Lacy has been on Trikafta (a CFTR modulator, aka miracle drug) for 3 years and continues to do so well. She has not had to do breathing treatments since August 2022 and only has to see our beloved pulmonologist about every 6 months. Lacy still takes pancreatic enzymes (Creon) with food, but has not had to increase her dose in a few years and has been able to maintain a healthy weight, for her. We hope this means that her pancreatic function is improving due to Trikafta. She battled a couple viruses this year, but her lung function continues to be 100% or better. Fifteen years ago today, Lacy was still in the NICU and we had only found out about her diagnosis a little over a week before. To think of where she is today, really feels like a miracle.

Lacy is finishing up her freshman year of high school. She just turned 15 and is now driving! She played volleyball and soccer again this year. A couple months ago she decided to try something new and made the JV Cheerleading team for next year. We are enjoying this season of life and love watching Lacy become an amazing young woman.  She is sweet, smart, athletic, beautiful and so funny. And we are so proud to be her parents.

The CF Foundation spent a total of $218.1 million on research and development. This research includes exploring ways to use gene editing, which would correct mutations in the CFTR gene, or gene therapy, which would provide a correct copy of the CFTR gene to cells. First, they must find a way to deliver the treatment to the right cells. Fixing or replacing the CFTR gene to address the root cause of CF would mean people with the disease will no longer have CF!

We will, therefore, continue to support the Cystic Fibrosis Foundation for as long as it takes to make CF stand for CURE FOUND. We started our fundraising this year with a Loving Lacy tumbler and raised $440!! We will also be making new Loving Lacy t-shirts (details coming soon)! All proceeds will go directly to the CF Foundation which continues to be the world’s leader in the fight against CF. If you would like to support our team and the CF Foundation, please visit our Great Strides page at https://fightcf.cff.org/goto/lovinglacy2024.

As always, we are eternally grateful for our family and friends who have supported Team Loving Lacy in so many ways over the past 15 years. Words simply cannot express how much you all mean to us.

Until it’s done…

Much love,

Brad & Ashley