Every birthday is a blessing! Breathing itself, is a blessing.
Desi is turning NINE years old and WE WANT MORE BIRTHDAYS WITH HER!!
Instead of going to get coffee (or a treat) DONATE that $9 here for the Cystic Fibrosis Foundation to give Desi many more birthdays!
9 years ago Desi was born and diagnosed with cystic fibrosis- a progressive, life shortening genetic disease that causes thick sticky mucous to line the organs of the body and reduce their impact.
The lungs themselves are hit especially hard so overtime it can becoming more challenging to take a deep breath.
When she was born the median life expectancy was 38 years old. And while, thankfully, that number is greater today- 61(!), that is not a guarantee for her.
That median life expectancy has increased because someone said "This story will be different" and did something about it.
*HOW TO MAKE YOUR IMPACT: *
-Donate $9, or $19, $99, $999 anything!
⁃ Challenge your friends to get involved, let them have a chance to participate (
tag them in a comment)
⁃ scroll down and click "Invite Friends" then select "Invite All"
⁃ Share this page on your news feed (tag me in it so l can see it!
)
⁃ Pray for the scientists, clinical trial participants and Foundation staff that every dollar brought in- will 'Drive Miss Desi to a Cure for cystic fibrosis'!
⁃ As always, please continue to pray for our family- for strength, available resources and new medications.
Does your business want to make a corporate donation? or MATCH Donations?
DM or email me!
Thank you for being a CHAUFFEUR and being a part of Driving Miss Desi to that finish line of a cure!
Gratefully,
Jamie and Ross
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.