Rick Robbins

My Great Strides Story

On this very date 58 years ago

An angel was born with a pure heart and pure soul

When she entered the world, her future was bright

Her smile so wide and eyes that could brighten the night

But the cloud of cystic fibrosis reared its cruel head

She won't make it long the doctors all said

But Tena was a fighter. She wouldn't give in

She gave it her all so CF wouldn't win

Over the years her battles were tough

Most people would say enough is enough 

But my big sister never complained 

She just kept on fighting through all of her pain

The time finally came when she could fight no more

Her time to meet Jesus on that Heavenly shore

Fifteen years here with me

Was not nearly enough but at least she was free

Her pain was over. Her suffering done

She fought the good fight but CF finally won

So I write this today to honor that girl

And the effect she had on those in this world

If you knew her, you truly were blessed

To see how she fought through every test

You see, she wasn't here long, but her impact was mighty

After 46 years gone, I still miss her nightly.

Nearly 40,000 people, like my sister and brother, in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.