D for DYNAMIC. Declan has dynamic expressions. His frown will break your heart but his smile is sunny and full of life and would melt the iciest heart.
E for EAGER. Declan is eager to explore wide open spaces and have room to run and be free.
C for CUNNING. Declan doesn't always let on, but I've seen the wheels turning and he can be quite the stinker. Just watch him play catch with his mom during lunch.
L for LOVE. Declan is full of love. When he rests his hand on this aunt's arm, this aunt heart can't even handle the sweetness!
A for AUTHENTIC. Declan is himself. May he never grow out of that.
N for NEIGHBORLY. Declan has met some of his neighbors and brightens their day by being their friend.
It's been a big year for Declan and for CF. Trikafta is a drug that has been approved by the FDA within in the last year. While not a cure, it's helped a lot of people and is now accessible for those 12 and up. It's a big deal! Since our last CFF Great Strides Fundraiser walk, Declan has turned 3, had eye surgery, been diagnosed with autism, AND STARTED PRESCHOOL! He does half days and is crushing it.
Our whole family loves watching Declan grow and look forward with anticipation to what he will accomplish next. We are also cautiously optimistic. This year has brought us to the hospital more than once. We hate seeing our little fighter stuggle. That is why we walk. We dream of a day when Declan no longer needs breathing treatments and his food can go down without enzymes or laxatives.
Please support me, my family, and my nephew Declan!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.