Vincent was diagnosed with Cystic Fibrosis at 2 weeks old. It is with your love and support that we are able to fight this disease. Vincent takes 6 pills every meal to help aid digestion. He does several breathing treatments a day to help thin the mucus in his body and fight infections. And we manually do chest therapy on him daily. Every month we visit Lurie Children's Hospital to meet with his team: his pulmonologist, repiratory therapist, dietician, physical therapist, and more. These visits last upwards of 3 hours, but we are lucky to have such a specialized team with dedicated support.
Real progress has been made for those who have CF, but there is still no cure for this devastating disease. We've come so far, but there's still so much work to do. Our team will not stop striding until all those with cystic fibrosis have a cure.
Our family has chosen to participate in our local Great Strides walk, which benefits the Cystic Fibrosis Foundation. Research and care supported by the Foundation are making a huge difference in the lives of those with CF. They have already helped us personally so much in less than a year. Your gift is 100-percent tax deductible, and a lot of companies will also do matching donations!
Thank you for all of your support, love, and donations. Hopefully one day we can make CF stand for "Cure Found."
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.