Greetings and thank you for your continued support to the Cystic Fibrosis Foundation! This year marks our 20th year of fundraising for the foundation (with a gap year in 2020). We've been blessed by your participation in so many ways, it's difficult to put into words exactly how much your steadfast kindness has meant to our family, and the entire Cystic Fibrosis community, throughout the years.
In 2019 a CFTR modulator became available to 90% of the CF population that corrected the genetic defect in people with Cystic Fibrosis! For those that do not know, Joe was one of the fortunate, historic, trial participants that helped this drug come to fruition.
You might be wondering: why are we continuing to fundraise if Joe is taking a pill that corrects Cystic Fibrosis? The answer is, 10% of the people with CF do NOT have a CFTR modulator that works for them; that equates to about 7,000 people that still need our help.
Not only that, but we have found that the annual CF GREAT STRIDES walk is something friends and family put on their calendars and look forward to each year. It is a chance to see each other, share a lunch and get some exercise.
On May 13th we will be at Bussee Woods again - in a different location: Grove 24. For those of you that know where the boat rental is, it is close to that. The entrance is off Higgins road. There are two entrances off Higgins road. It's the entrance closest to 53 (aka 290). Coming from Arlington Heights road and turning right onto Higgins, it's the second entrance. Once you turn onto the Busse Woods property, grove 24 is about a mile ahead. I'm sure there will be balloons and signs to guide you. It will be an adventure!
We plan get there to set up at 10:00 a.m. Registration and t-shirt pick up is at 10:30 a.m. and the walk steps off with bag pipes at 12:00. The walk is typically the distance of a 5k. If you are limited in time or ability, you can shorten the walk or sit at our tent with the team's belongings. Whatever your capability we have a place for you!
Thank you for making this your charity! We know there are many to choose from so please know we value your partnership in this.
With much love and gratitude,
Stacy, Mike, Joe and Josh
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.