This is our 20th walk for the Cystic Fibrosis Foundation – our first walk was when Megan was just about 5 months old. It’s hard to process everything that has happened over the past 20 years. The excitement, fear, joy and hopefulness of her birth has continued as Megan is now in the middle of her first year of college. She is really enjoying her first year at Colorado College (they take one class at a time called the Block Plan), and she is participating in dance workshops, trips and arts and crafts workshops. Her transition to college was worked on for years and we are so grateful for all who have helped her achieve this success.
Since we began, Team Megan has raised over $1,138,000, and we know that Team Megan has made a difference in so many lives. Trikafta, a life changing drug, was approved by the FDA in October of 2019. Trikafta treats the underlying cause of cystic fibrosis and it has proven to slow the progression of the disease and prevent the decrease of lung function. Over the past several years, this drug has proven to be life changing for so many individuals with CF. Most notably, the median predicted survival age is now 56. This is an 18 year increase over the last decade. Thank you for your help in making that happen.
But we are not done. We still need a cure. So, we are asking you, once again, to support Team Megan. A donation of any kind would be greatly appreciated.
https://fightcf.cff.org/site/TR/GreatStrides/45_Greater_Illinois_Chicago?px=1508452&pg=personal&fr_id=10437
We will be walking in Chicago on Sunday, May 19 at Montrose Harbor. If you are interested in walking with us, you can signup to walk or just let me know at maureenmriordan@gmail.com.
We are continually grateful for the outpouring of love and support. Thank you so much! Love,
Frank, Maureen, Megan and Kelsey
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.