Our son Arlo was diagnosed with Cystic Fibrosis shortly after his arrival in this world. He is now 11 years old, and he is already turning into an awesome young man. He is a smart guy that loves to shoot hoops, wants to play the drums, and loves his videogames. He is not alone in his fight against CF; his little brother Matteo was also born with the disease. Matteo is 7 years old. He loves playing and fighting with his older brother, is an avid reader, and sillier than anyone. Matteo is also real tough guy but always happy to give a hug and a smile.
Other children with Cystic Fibrosis are not as lucky as our 2 little dudes. Cystic Fibrosis is a devastating genetic disease that affects tens of thousands of children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation is making a tremendous difference in the lives of those living with CF. These remarkable children can have shortened life spans, endless hospital stays, lung issues resulting in transplant needs, failure to thrive, and many other health problems. Daily life can be very difficult for children with CF, but this disease doesn’t define them.
We will be walking in the Cystic Fibrosis Foundation Great Strides Event in Frankfort IL on 5-6-2023 at Commissioners Park. Please help us meet our fundraising goal by sponsoring us. Making a donation is simple, and safe. Every dollar you donate goes directly to fund research and support for families and individuals living with Cystic Fibrosis.
Post this to your Facebook page, grow an FUCF beard to raise awareness, or just stop by and give us a high five to show your support.
We Love Yall!
Colin, Linda, Arlo, and Matteo Luce
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
FOR YOUR SAFETY AND THE SAFETY OF OTHERS: