Join our team and help Oliver add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe.
Oliver Gregory was diagnosed just three weeks after birth, our family was devastated, but that didn’t stop us from learning and bringing awareness to this Progressive Disease. Oliver is now 5.5 years old and doing really well with his health & weight. Oliver's a very happy little guy given all that he's going through on a daily basis. Oliver continues to do many treatments including an Inhaler to open up his airways, then CPT (chest compressions with The Vest machine) for twenty-seven minutes to loosen the mucus in his lungs, and a nebulizer treatment while he has the Vest on to break up all the mucus in his lungs.
Ollie takes enzymes daily in order to digest his food properly. As Ollie grows and his daily caloric needs increased, so does the dosage of enzymes. He must take about 13 pills a day, just to digest his food. That's about 4,745 pills a year just so he can eat and maintain a healthy weight. He now knows to remind me about taking his enzymes and vitamins before eating. He so smart!
BECAUSE of YOU and DONATIONS around the world, Oliver started a drug for one of his two mutations. KALYDECO is a prescription medicine used for the treatment of cystic fibrosis in patients age 2 years and older who have at least one mutation in their cf gene that is responsive to KALYDECO. Oliver takes this medication twice daily following a high-fat meal.
We will walk for Oliver! Will you join us? Will you walk with Oliver to find a cure?
All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising. If you would just like to kindly donate, please just click "Donate to a Team Member".
By becoming a member of Team Ollie Ollie CF Free and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF and Oliver by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families. Please come out and support our little man, Oliver, and walk hand in hand with him and our family.
Thank you kindly,
Zach, Jenette & Oliver
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Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
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