Vincent was diagnosed with Cystic Fibrosis at 2 weeks old. Even though he's just 3.5, he's become very familiar with his CF routine. He takes multiple pills every meal to help aid digestion - taking over 200 pills a week. He does several breathing treatments a day to help thin the mucus in his body and fight infections. These take about 2 hours a day. And we manually did chest therapy on him until he was 1. Now he does the shaky vest a few times a day. Every quarter we visit Lurie Children's Hospital to meet with his team: his pulmonologist, repiratory therapist, dietician, physical therapist, and more. These visits last upwards of 3 hours, but we are lucky to have such a specialized team with dedicated support.
The CF Foundation continues to explore the most promising science to help all of those living with CF. More than 10 therapies have been approved, which have helped add decades to the lives of people with the disease. While we now have life-changing medical treatments for many people with CF, some people with CF do not respond to these medications. In Vincent’s case, he is not yet old enough to access them.
While researchers have made great strides over the years, there is still NO CURE and more research is needed. Beyond a cure, the CF Foundation is doing all it can to help patients and families gain access to the best care, as well as navigate insurance, financial, mental health and legal services.
Our family had chosen to participate in our local Great Strides walk benefitting the Cystic Fibrosis Foundation - please consider supporting us with a donation! Your gift is 100-percent tax deductible, and a lot of companies will also do matching donations.
Thank you for all of your support, love, and donations. Hopefully one day we can make CF stand for "Cure Found."
-Vincent Van Go Get 'Em
Follow our journey on Instagram: @vincentvgge
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Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
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