There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe.
Oliver Gregory was diagnosed just three weeks after birth, our family was devastated, but that didn’t stop us from learning and bringing awareness to this Progressive Disease. Oliver is now 5.5 years old and doing really well with his health & weight. Oliver's a very happy little guy given all that he's going through on a daily basis. Oliver continues to do many treatments including an Inhaler to open up his airways, then CPT (chest compressions with The Vest machine) for twenty-seven minutes to loosen the mucus in his lungs, and a nebulizer treatment while he has the Vest on to break up all the mucus in his lungs.
Ollie takes enzymes daily in order to digest his food properly. As Ollie grows and his daily caloric needs increased, so does the dosage of enzymes. He must take about 13 pills a day, just to digest his food. That's about 4,745 pills a year just so he can eat and maintain a healthy weight. He now knows to remind me about taking his enzymes and vitamins before eating. He so smart!
BECAUSE of YOU and DONATIONS around the world, Oliver started a drug for one of his two mutations. KALYDECO is a prescription medicine used for the treatment of cystic fibrosis in patients age 2 years and older who have at least one mutation in their cf gene that is responsive to KALYDECO. Oliver takes this medication twice daily following a high-fat meal.
We will walk for Oliver! Will you join us? Will you walk with Oliver to find a cure?
All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising. If you would just like to kindly donate, please just click "Donate to a Team Member".
By becoming a member of Team Ollie Ollie CF Free and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF and Oliver by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families. Please come out and support our little man, Oliver, and walk hand in hand with him and our family.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.