Laura Steinhaus

Before December 3, 2019, I had only ever heard of Cystic Fibrosis in my high school biology class. On Emily's diagnosis day, I had no idea what this diagnosis would mean for her life. As Emily grows, I know more and more. We do daily treatments, she takes digestive enzymes with every meal, we add medications as needed, and we are especially careful about germ control. We are lucky that there are many recent advancements for people with CF, and those advancements are largely due to the work of the Cystic Fibrosis Foundation. Just last spring, Emily started taking Trikafta - a genetic modulator, the creation of which was funded by the CFF and approved for Emily's age group not even a year ago. This medication has significantly improved the health of many people with CF, including Emily. 

Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We've come so far, but there's still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.

We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!