As you know our grandson Lucas has Cystic Fibrosis. It is hard to believe that he has just turned six and you would never know to look at him that he has CF. He is cute, charming, impish, is a Super Mario fanatic, is board game whiz, has kindergarten friends and is a loving brother to his eight month old sister Ellie. In fact, he went for three for three with a run and RBI in his first baseball game this year! But behind the scenes it is a different story - he has a significant medication regime and he spends two hours a day on breathing treatments.
Our family continues to support the Cystic Fibrosis Foundation and its efforts to eliminate CF in many ways. We volunteer for various activities. Oldest daughter Nicole is a member of the local Cystic Foundation board of Directors. And of course Luke's parent Jenna and Scott support him at home and in many Foundation activities.
Luke's life is a vast improvement from it could have been. His life expectancy continues to grow and his medication load is being reduced. He has only had one minor hospital visit in his six years. This is possible through the research made possible in part through contributions from the CF Foundation.
The next CF fund raising event is Great Strides - a walk around part of Lake Michigan in downtown Chicago on Sunday May 22. This will be the first walk in three years due to the pandemic. While we will not be walking due to our own situations, we are asking you to support this fund raising effort with your pledge to Cystic Fibrosis.
We know the financial demands on your own families and requests for your charitable contributions are great. But we ask you to seriously consider joining us in supporting the event which is obviously near and dear to our hearts!!
Chuck & May