My Great Strides Story
At 2 weeks old, Conor was diagnosed with 2 mutations for Delta 508. Our lives were changed forever...we had never really heard of Cystic Fibrosis and were quickly thrown in to a new way of life. Without the CF care team at Advocate Children's, the CF foundation, and our family and friends we wouldn't be where we are today.
Conor is currently in Kindergarten surrounded by a strong school community with uplifting teachers and friends. We are so thankful he feels comfortable to take his enzymes twice a day at school. He takes 7 pills in the morning, completes 20 minutes of chest therapy (his vest) and takes his nebulizer treatment of pulmozyme all as a preventive measure to stay healthy. He loves the drums, baseball, basketball, soccer, his sister, pizza, and of course video games. He has taught us how to be consistent in daily routines, be resilient, and to be strong through whatever life may throw you. Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. This continues to grow higher and higher because of the research.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
Thank you for continuing to help us create a "normal" life for conor!
Love, The Murphy's Brendan, Meg, Conor and Maeve