Kylie is a spunky, fun loving 7th grader this year! We can't believe how quickly she is growing up! Kylie will be a teenager soon on June 3! Last year, Kylie started taking a drug called Trikafta. It has helped to get her lungs healthy and cough-free! It is truly a miracle, but it is not a cure.
Kylie continues to do her airway clearance every day and currently takes 4 nebulizer treatments each day. We hope eventually to lessen her treatments! Kylie continues to culture chronic staph in her lungs, but so far she has been able to get rid of the chronic pseudomonas since starting Trikafta! She continues to do tube feedings most nights and still is struggling to gain weight. She actually weighs 5 pounds less than she did one year ago, but one positive thing is that she is actually eating much better than she ever has!
We want to thank all of our family and friends for supporting team Kylie's Krew over the years! We are so appreciative of any donation you are able to give.
Jim, Kerry, Tyler and Kylie