There are approximately 30,000 Americans living with cystic fibrosis. One of these fighters is my 6 year old nephew, Luke. CF can be deceiving because from the outside you see a sassy, Mario-loving energetic little kid ... but what you don't see is that on the inside, his body is allowing mucas and infection to suffocate his lungs, liver, pancreas and airways. To combat this, everyday he does multiple hours of breathing treatments and takes multiple medications. He also has to take enzymes before any food or drink other than water to try and help absorb nutrition. There is no current cure for this condition.
Many with CF end up with long stays in the hospital due to lung, pancreatic and other organ deficiencies. Nutrition absorption is very hard in those with CF And, For Luke, the biggest issue to date has been extreme buildup on his sinuses that has already required surgery.
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.