If you've followed our story you know that our son Lucas was diagnosed with Cystic Fibrosis when he was born. Lucas has been taking enzymes with every meal and snack since he was about a month old. He takes two different inhaled medicines twice a day through a nebulizer, and uses a vest for chest clearance therapy twice a day. Lucas has been extremely lucky given the severity of this disease and only hospitalized once for a sinus surgery.
There have been HUGE advancements made in medications for this disease. Hopefully next year he will begin taking the modulator, Trikafta, which has had a monumental effect on CF patients' health. It is with your help and donations that Trikafta was made possible. However, there is no cure. With your help research can continue to find a cure for every patient with CF and eliminate all of the medications and therapies needed to ensure a long, healthy life for Luke.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!