Hello Friends and Family,
It's that time of year where me, my family and friends walk 3 miles to help raise money for Cystic Fibrosis. I was diagnosed when i was about 2 weeks old. I am now 13 years old and in the 7th grade. Here is an update on how I am doing:
Sometime in November of 2022, I was not feeling good. I was given antibiotics and increased my therapy. I started to feel better. December of 2022, I was sick again, more antibiotics and increased inhaler and therapy time. January 2023, i was sick..again. More antibiotics, increased therapy and inhalers. February 2023, I caught COVID! We tried for so long to make sure i would not catch it. :( I missed about a week of school. i had a fever and was coughing more. I started to feel better, or at least i thought so. March 2023, I was coughing a lot more and when i walked the stairs at school, i felt like i was walking 20 flights of stairs. I was having trouble breathing as well. We contacted my CF doctor and she wanted me to come in and see her. Whenever i see my doctor, i have to take a breathing test to see how my lung function is. This test is on a computer and it is a picture of a birthday cake. That cake has about 20 candles and i have to blow out as many as i can through this tube that i am given. On this day, which was March 15th, 2023, I could barely blow out 2 candles :( No bueno. My doctor came in to deliver the bad news to me..I was going to be admitted into the hospital for 2 weeks! At first i was okay with it because i was so tired of being sick and i was going to not go to school for 2 weeks! :) After my first night, i wanted to go home :( I was told that a PICC line was going to be put into my arm for the 2 weeks while i was there. All day and night, i had a team of doctors, nurses and therapists come into my room. It was hard to sleep during all of this and don't get me started on the hospital food. Blah! I think the worst part for me was that i was not allowed to leave my room. :( The best part of my hospital stay, was that i received so many baskets of goodies from my family and friends and so many get well cards from my school! I did finally get some type of freedom, they let me go outside for some fresh air but in a designated area. So what exactly caused this, it is called an exacerbation in my lungs. In many cases, an exacerbation is caused by an infection in the lungs. On March 29th, 2023, I was finally able to go home! I didn't get much of a spring break but i was happy to finally sleep in my bed and see my dog! :)
Currently there is still no cure for Cystic Fibrosis :( So can we count on you for a donation? Any amount is appreciated!
Laila O. Lopez