Liliana Lopez

Hello Friends and Family,

 It's that time of year where me, my family and friends walk 3 miles to help raise money for Cystic Fibrosis. I was diagnosed when i was about 2 weeks old. I am now 14 years old and in the 8th grade. Here is an update on how I am doing:

I was doing pretty good until i started to experience bad back and side pains. One day in the middle of the night, i could no longer take the pain! I ended up in the hospital and an Xray showed...Kidney Stones! Ugggh! The drs were even surprised because of my age. I was sent home with some pain meds and Flomax, which is supposed to help you pass the stones. Unfortunately it didn't help me so the Neurologist suggested surgery. Surgery went well but i had to have a stent placed in. I was also closely monitored by the Anesthesiologist because of my CF. I had some slight coughing after the breathing tube was removed but nothing too concerning. I was given a 4 week follow up and another surgery to remove the stent. The stent was removed and no other kidney stones were seen. So it was going well..EXCEPT my breathing tube had blood in it (sorry TMI) and i was coughing up blood. (sorry) So the Dr. recommended and consulted with my CF dr, that an overnight stay is recommended. I was not happy about that! Turns out i had another infection in my lungs :(  When that happens, a PICC line is put in me and antibiotics are given to me via the PICC line. I ended up staying 2 nights. It was also almost 1 year to the date from my LAST hospital stay and once again during my spring break! :(  I recently had another follow up appt with the neurologist and he said everything looked good but wants to see me again in 6 months! 

So on a happy note, I will be graduating 8th grade this month! :) I am nervous about high school though. I am currently thinking of becoming a Respiratory Therapist. :) I look forward to hanging out with my friends over the summer and playing softball and volleyball. I almost forgot something , back in September of 2023.. I was granted a Make a Wish! My wish was to go to Maui Hawaii. I didn't get to visit Maui because of the fires so we ended up going to Oahu. It was beautiful and awesome! I did some snorkling and did a hike to see a beautiful waterfall. I hope to go back again someday! 

Ok so currently there is still no cure for Cystic Fibrosis :(  So can we count on you for a donation? Any amount is appreciated! 

http://fightcf.cff.org/goto/teamlol

Thank you!

 Laila O. Lopez

Team L.O.L.