Hello! We are walking for our son Nathaniel. He is thirteen years old with Cystic Fibrosis.
2020 was a year filled with unprecedented challenges due to the pandemic. With so much uncertainty we took a lot of extra precautions for Nathaniel’s sake. Things finally seem to be getting back to normal. Nathaniel is happy to be able to get back outside and play with his friends and get back to a somewhat normal school schedule. Nathaniel also continues to take Trikafta, and has been gaining quite a bit of weight. He also says he feels like he has more energy. Unfortunately, his lung function has not improved as much as we would like, it also hasn’t declined.
While Trikafta isn't a cure, it is promising to hear that there is discussion in the medical community that this drug may mean an end to the need for breathing treatments, enzymes with meals, and lung transplants. This would mean Nathaniel could live a more normal life, without many of the effects of CF bringing him down. This is the direct result of YOUR donations, and they have affected so many others too. But, there are still plenty of others with slightly different mutations of CF who do not see the same results.
Nathaniel just wants to be a "normal" kid that can play, eat without medicine, and NO more breathing treatments. He deserves to breathe just like you and me!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them and hope you will support us in our efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease, but there are drugs on the horizon to control it. Ninety cents of every dollar donated funds research towards finding a cure.
By walking today, we are helping add tomorrows to the lives of people living with cystic fibrosis. Will you join us? Support Nathaniel by making a donation to our Great Strides fund-raising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families. Watch Nathaniel's YouTube video visit https://youtu.be/ClrXcxgW_mE