Lauren's Legacy will be participating in Great Strides for the virtual walk on June 5, 2020!
We walk in honor of our dear friend Lauren, who we lost in December 2009. Lauren was a fighter and never let her disease bring her down. I'll never forget her laughter, smile, and all the wonderful memories we shared. Many of Lauren's friends and family have come together and formed the Lauren's Legacy team to raise money towards finding a cure for cystic fibrosis.
2015 brought FDA approval of the drug Orkambi, which treats the gene defect Lauren had. Most recently, the U.S. Food and Drug Administration (FDA) approved Trikafta, a transformative therapy for people with cystic fibrosis. With this approval, more than 90 percent of people with CF could eventually have a highly effective therapy for the underlying cause of their disease. Yet, not everyone can benefit from Trikafta, Orkambi, or other existing therapies, so we are not slowing down. Our ultimate goal remains a cure for all people with CF.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. By raising money, I am helping add tomorrows to the lives of people living with cystic fibrosis. Please support me by making a donation to my Great Strides fundraising campaign today!