My daughter Brianne is 10 years old and she has Cystic Fibrosis. She was diagnosed through the newborn blood test. When she was 8 days old we receiveda call from her doctor telling us that she had CF. Brianne goes to a specialtyclinic every 3 months to check her growth, make sure her lungs are clear and any questions we may have. She started taking enzymes, to help her digest her food and gain weight when she was just over a month old. She will take these enzymes every time she eats, forever. At 2 years old she started using her therapy vest, shaky vest. This is used to help loosen up any mucus that is stick in her lungs. This year will be the 10th year we have participated in the Great Strides walk. We want to help raise awareness and money for the research needed to help find a cure for Cystic Fibrosis. We want Brianne to one day be cured of CF and not have to worry about taking pills, hospital stays and CF holding her back. Will you help us in this fight against Cystic Fibrosis?
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.